Orlena Broomes

When Orlena Broome’s son, Jefferson II (Jefferson), was born at just 26 weeks, her life changed overnight. Suddenly, she was not only a new mother—but also a full-time caregiver and fierce advocate. 

From the beginning, Orlena and her husband Jefferson Sr. (Jeff sr.) were unwavering champions for Jefferson, who was later diagnosed with developmental delay. They worked to ensure he had access to the resources he needed – educational and medical and beyond, while supporting his independence and inclusion.  With their encouragement and persistence, Jefferson was the first student with a disability from his school to graduate and leave home to pursue a college degree. 

Now 35 years old, Jefferson works part-time at a local charity. Despite his wages and the provincial and federal funding he receives, Jefferson does not make enough to live independently as he would like to.  

“The average one-bedroom apartment in our town is $1,600 per month. With the benefits he currently receives, he would have to choose between paying rent or buying food. And even then, it would not be enough, and there is no room for “wants.” 

Jefferson’s health needs have evolved as he’s grown older, requiring specialists not covered by provincial insurance. Some costs are offset by his dad’s work policy, but many expenses come straight out of the family’s pocket. 

When the Canada Disability Benefit was introduced in 2025, Orlena and her family were hopeful that the additional support would help Jefferson reach his goals and live independently. Unfortunately, because of his earnings and other government benefits, he is only eligible to receive only $29/month. 

“You think you’re getting more and that it’s going to help, but they claw other things back. It’s impossible to get ahead.” 

Jeff sr. plans to join Orlena in retirement in 4 years. Though Orlena worries about what the future may bring for their family, she stays grounded in mindfulness and in her faith, taking it one day at a time. 

As for Jefferson, he is following in his parents’ advocacy footsteps, writing letters to his MPP and speaking out for a more accessible and just future for all people with disabilities.